Saturday, December 21, 2013

‘The most vulnerable people in our society’: Dáil hears medical card horror stories

‘The most vulnerable people in our society’: Dáil hears medical card horror stories

The medical card in Ireland is given to those with extensive medical needs for free care, or those whose income falls below a certain level. A FULL medical card covers GP visit, eye doctors, some dental care, cover for medication, physiotherapy, Occupational Therapy...etc

A GP card only lets you see a GP free.  All else you have to pay for.

Seeing a GP costs from 55euro to 75e depends where you live or GP.

Thursday, December 19, 2013

St Vincent’s Hospital at centre of drugs cover-up accusations and HSE top-ups row - Independent.ie

St Vincent’s Hospital at centre of drugs cover-up accusations and HSE top-ups row - Independent.ie

corruption because of private medicine . private hospitals should be abolished. but Vincent's (where I attend for breast cancer and Parkinson's is dual public & private.  Private cancer patients were charged for drugs that are FREE to cancer patients!

UK Establishment Closes Ranks as Organised Child Sex Abuse Network Leads Back to No. 10 | Scriptonite Daily

UK Establishment Closes Ranks as Organised Child Sex Abuse Network Leads Back to No. 10 | Scriptonite Daily

Not a disability story per se but close in that children in children's homes were/are vulnerable.  You have to read this,  W are complicit if we are silent.  No doubt about it.  Power must be dismantled when it is corrupt. This is more than corrupt.  It is evil. 

Shocked but not entirely surprised Ray Wyre is 'on the list'.

Sunday, December 15, 2013

It's deja vu on charity chiefs' big bucks - Independent.ie

It's deja vu on charity chiefs' big bucks - Independent.ie

This is a MUST read to understand why disabled people feel aggrieved and do not like charities to provide that which the STATE ought to provide because we are CITIZENS too!  But we are NOT seen as citizens.  We are seen as scroungers, useless and expensive.  As if we've nothing to offer so don't give them anything, not even a decent wheelchair.

Inspirational doctor left paralysed from waist down returns to surgery thanks to 'stand-up wheelchair' - Yahoo News UK

Inspirational doctor left paralysed from waist down returns to surgery thanks to 'stand-up wheelchair' - Yahoo News UK

Why is he called 'inspirational'.  He had a terrible medical emergency leaving him paralysed but he is perfectly capable of doing surgery.  Many surgeons SIT for surgery . Is it so unbelievable that a disabled wheelchair user can be a surgeon that they call him inspirational?

If we all realised the potential in EVERY disabled person there would be hundreds of disabled surgeons but many are not taken on to train and therefore we don't see them that often! 

I don't see him as 'inspirational' I see him as a man 'gone back to work'.

Quit all this emotional crap.

Tuesday, November 12, 2013

The Pope embraces man suffering from disfigurement

The Pope embraces man suffering from disfigurement

FFS   Sorry folks but it's bad enough having neurofibromatosis without it being allied to leprosy!

and all this huggin & kissin by the Pope of disabled people sickens me.

Admiration...why admiration...because he might be contaminated?  Because it's not a great idea to touch a disabled person? because we are all 'unclean'.  I'm raging, raging.

Wednesday, October 23, 2013

British couple jailed for rape and trafficking of deaf girl

British couple jailed for rape and trafficking of deaf girl


Trafficking of disabled children has been low under the radar.  What future has this poor girl.

Please can we always THINK about trafficking of disabled girls and women in the field of trafficking.

Monday, October 21, 2013

Angry note left for paralysed man who parked in disabled spot goes viral - Independent.ie

Angry note left for paralysed man who parked in disabled spot goes viral - Independent.ie

you can't win can you, you are either a benefits scrounger or a blue badge fraudster!  not supposed to drive a BMW and hey....shouldn't you be on the welfare or being 'looked after' by a nice wee charity.

Monday, October 14, 2013

Friday, October 11, 2013

Killing the Disabled | Psychology Today

Killing the Disabled | Psychology Today

a disturbing but essential article.  hate crimes against disabled people is rising.  cuts to benefits is just a hair's breath away from euthanasia...

Man with Down Syndrome screamed in pain at Beaumont Hospital - Irish Mirror Online

Man with Down Syndrome screamed in pain at Beaumont Hospital - Irish Mirror Online


I really don't get this!  Why could he not have both antibiotics AND morphine.

Morphine does supress breathing but the man was in agony.  Why was he not TREATED for the pneumonia?

Wednesday, October 9, 2013

HSE seeks SVP help caring for patients | Irish Examiner

HSE seeks SVP help caring for patients | Irish Examiner

This is bang OUT OF ORDER!

The politicians cut everything and ask the Charities to fund health care.  Not on...

HSE = 'Hell service of evil' ; Ireland's health service & Disability

I don't usually stop to take time to write a piece for this blog.  It's not that sort of blog.  it was intended to be more like a notice-board.  But I change tactic in the face of evil. 

Many don't believe there IS evil in this world, but there is.  and it can be summed up in one word 'judgement' .  Who are WE to judge?  Well do we need some 'judgement' or there would be anarchy in our streets.  Laws need judgement.

What I'm speaking of here is when people make judgement about Disabled people that they have no right, skill or experience to do so.

and we are seeing more and more of that now, especially enshrined in Governments policies that need to cut budgets and attack disabled people in doing so.  Like ATOS in the UK.  Here in Ireland there tends to be less judgement politically , at least overtly, they just go ahead and slash all benefits to Disabled people without saying anything.  They listen to no-one, and a march here and there doesn't impact at all.  Disabled people just seem to lie down and take it.  And no disability organisation, so far, has really got off the ground in a mega fashion to rip roar riot over the cuts.  The one organisation that makes press releases does a good job on facts and clearly confronts and tells the truth but they are not out there causing a rukus, because they want to 'work with the government' I think, keep 'in', so as to change things.  They really think being kept around the table in Leinster House (our seat of Government) is REALLY going to change things. Bollocks.  it hasn't up till now, has it!?
They don't seem to SEE the government chains, chaining them to that table! 

Here in Ireland our professionals in the Health Service Executive, [that should stand for HELL service of EVIL] are getting in on the 'evil of judgement', in order not to give a service because they allegedly cannot afford to, they libel and slander their clients instead.  yes, I know this for a fact.  I've seen one woman's files, gained by her under the 'freedom of information' act,  the physiotherapists, the managers,  the Occupational Therapists, the Home Help files, all of them.  And all I've seen is EVIL. 

evil Judgement. Evil throughout.  Nothing but evil, spawned by an Irish Government hell bent in crucifying a vulnerable population. I brought to the attention of my nurse the other day an elderly woman and she just muttered that "there's more to that story" in a clearly 'pissed off' tone.  This woman is 85, I happen to believe her.  Her equally elderly 'boy-friend' across the way was to say to my twin "I thought the HSE was supposed to care - they are evil"...he's 85 for God's sake! She's 85 for God's sake and they speak like this because they've touched evil in our care-givers.

take the issue over a BATH, yes a BATH.  Don't you just LOVE to soak those weary bones when tired and stressed and ill.  Well so does one disabled woman.  So does SHE! But Ha!  No! when she applied for her housing adaptation grant she wasn't allowed keep her bath.  No amount of "but I'm in terrible pain, I NEED my bath" worked.  T.D's couldn't change the HSE mind...at first...but eventually after ONE WHOLE YEAR they relented.  When the manager of OT services was off sick, her manager came to see this woman's house, she then over-ruled her staff member.  After a solid YEAR.  Who is this woman?

My Twin. now here's the rub, I had an adaptation grant as well and I wasn't made to have a wet-room, nor asked to, nor discussed with.  it transpires it's all about money.  It is perceived I have it, my twin doesn't.  So the OT told my twin , yes, admitted it "they don't want you coming back for more" [if she needs a wet-room later] . After they agreed she could keep her bath,  they then tried to get her to sign an agreement that she would not come back for more...she refused.  This is EVIL. 

They were PREPARED, quite prepared to let a sick and disabled woman suffer extreme pain (without a bath) because they wanted to SAVE money. They didn't do that to me, why? because I have 'Dr' in front of my name and they think I have money.  I don't or else I wouldn't be fund-raising with my twin for new wheelchairs and a van to transport them! These rickety old wheelchairs from of the Hell service of Evil, (HSE) are just that...HELL!

I could go on about the evil of the HSE in Ireland, the Health Service Executive should stand for HELL service of EVIL. It's no longer about 'care' it's about saving money.  It's no longer about your 'needs', it's about saving money.  It's no longer about compassion, for the way they work now is to slander and libel the patient/client to make her/him the 'baddie', so they can look the 'goodie', a special tactic used when they refuse services.  

I make no bones about it.  After 4 weeks looking at this woman's files I've seen the evidence with my own eyes, with my own eyes.



Friday, August 23, 2013

Atos deaths: memorial day and protest in London

Atos deaths: memorial day and protest in London

and many more die because service provision in the community are being cut back leaving them at risk to ill-health, injury, poverty and depression.

Disabled people are being euthanased  by stealth.

Tuesday, August 6, 2013

Police called to help with eviction of disabled tenant in Clarendon Park, Leicester | This is Leicestershire

Police called to help with eviction of disabled tenant in Clarendon Park, Leicester | This is Leicestershire##

disabled people can be abusive just like any other human...but did it have to come to this?

and the indignity of not even being dressed.  Was any work done on mediation with neighbours?  was he assessed as to why he's allegedly been abusive?  There's much we need to know.

The Agony and the Ecstacy of Parenting a Child with Intensive Needs

The Agony and the Ecstacy of Parenting a Child with Intensive Needs

This is a very insightful piece by a father/academic  friend of mine in Canada.  Dick Sobsey.  Dick has been at the forefront of disability child care for decades.  A truly inspirational man.

Well worth the read

Saturday, August 3, 2013

Woman with Down syndrome prevails over parents in guardianship case - The Washington Post

Woman with Down syndrome prevails over parents in guardianship case - The Washington Post

a great decision.  What parents want to have SUCH restrictive guardianship orders? 

Clearly the judge undstood the balance between Jenny Hatch's wishes and guardianship.

Saturday, July 27, 2013

BBC News - Mentally ill people 'hit hard by recession'

BBC News - Mentally ill people 'hit hard by recession'

The poor, the ill, disabled people and elderly ALL hit hard.

We need to ask WHY?  If we do not then we are in danger of another holocaust where these groups of people are blamed for the woes of the Nations.

It's already happening .  A third of those polled on elder issues said older people were 'a burden' on society.

This will be YOU in a few years time.

BBC News - Blind woman attacked by youths in Edinburgh

BBC News - Blind woman attacked by youths in Edinburgh

give me these 'youths' for three minutes.  I wouldn't physically harm them, but they'd remember me!

Sunday, July 21, 2013

Beaten, locked up and ridiculed - the sickening abuse of disabled patients - Mirror Online

Beaten, locked up and ridiculed - the sickening abuse of disabled patients - Mirror Online

We need to expose all abuse of disabled people.  It is monstrous that 'carers'...huh! don't you love the word...do this!! 

There are good carers but the god ones must speak out about the bad ones

DeafHope | Emma Humphreys Memorial Prize

DeafHope | Emma Humphreys Memorial Prize

Wonderful to see 'DEAFHOPE' win the group prize of the Emma Humphries award 2012.  Years ago I won the individual prize (2004) and I hope my work on abuse of Deaf Children in 1989 -1996 and beyond stirred up a consciousness about abuse of Deaf Children.

Well Done 'DEAFHOPE'.



'Generic Drugs' Republic of Ireland'

a discussion on the Parkinson's Ireland site raises huge issues about drugs prescribed in Ireland.  A woman with Parkinson's declares she now gets a 'generic' (cheaper) version of her drug which is causing havoc with her.  Another woman gives a possible explanation
 " Usually it's the binder/inactive ingredients that are of inferior quality to the original brand. This causes particular problems in drugs that are required to cross the blood brain barrier. The drug needs to 'decompose' at just the right moment in its journey"
This means we need to be absolutely clear that we sick people will NOT take 'generics' if they are having a bad effect on our conditions.  we are NOT , apparently, obliged to take the generics and can demand the drug prescribed by our doctor.

Irish mother and daughter dead in suspected murder-suicide in Spain

Irish mother and daughter dead in suspected murder-suicide in Spain


This is terrible news.  Questions need to be asked.  Such headlines just tell people that the couple were despairing over their daughter who had Down Syndrome.  The word 'tragic' makes I seem like a sad event (which of course it is) but understandable....which it is NOT!

The questions I'd like to ask are:

  • Which of the adult parent did the killing?
  • Was it a 'pact' or did Mother & child not know it was going to happen?
  • what help were the parents getting?
It is NEVER OK to kill a disabled child or adult.  These cases only promote the view that disability is a tragedy and that the child/adult has caused such a terrible burden this is the only way out.

Society at present is hell bent in conveying that disabled people are expensive, scroungers and demanding and exhausting.  This leads everyone to believe it'd be best if we died. 

This is NOT a 'tragic' case...(per se) this is MURDER and should be viewed in the context that every life is valuable .  It also shows that society is NOT willing to support people who have any kind of difficulty or difference.  We are in an age of eugenics. 

Tuesday, June 25, 2013

Tuesday, June 18, 2013

Suspected rapist had tried to lure others into his flat - Independent.ie

Suspected rapist had tried to lure others into his flat - Independent.ie

Appalling .  My heart goes out to this young woman.  Can't understand why they have not arrested the guy and only put him 'under surveillance'

Friday, June 14, 2013

Man sought in connection with assault of woman - RTÉ News

Man sought in connection with assault of woman - RTÉ News

Ireland - a learning disabled woman taken off street whilst off jogging with her mother.  A terrible ordeal.  I just hope they get this man, and lock him up and throw away the key!

‘Serious concerns’ over Atos PIP contract promises

‘Serious concerns’ over Atos PIP contract promises

If the assessment centres are not up and running than what has ATOS done with the money?

Corruption and Lies it looks like eh?  INVESTIGATION NEEDED NOW!

Jogger with special needs attacked by sex predator - Independent.ie

Jogger with special needs attacked by sex predator - Independent.ie

dreadful.  and they'll get away with it too 'cos here in \Ireland they virtually never take learning disabled victims to court to give evidence.

Thursday, June 6, 2013

Hospital admits error caused 100-year-old’s death | The Times

Hospital admits error caused 100-year-old’s death | The Times

UK: 100 year old women dies due to very poor care!  Now it is called an 'error' .  A little mistake I suppose. 

well it's time the 'errors' did not happen!

Disability Benefit Changes To Lead To Shock £31 Million Cut In Carers' Benefits

Disability Benefit Changes To Lead To Shock £31 Million Cut In Carers' Benefits

UK news...is there no end to the savagery of the Cameron Gov.  You would NEVER think he had a disabled child!   Perhaps he's doing this because he thinks disabled children/adults are a 'waste' of resources!

Dublin People | Respite closure sparks angry Dáil protest

Dublin People | Respite closure sparks angry Dáil protest

Ireland:  Why are they not telling us what the 'unforeseen circumstances'  the 'crisis' is?

A disgraceful way to treat families and another example of how UNPROFESSIONAL the HSE management is and how the HSE as a health structure just does not work

Dublin People | Respite closure sparks angry Dáil protest

Dublin People | Respite closure sparks angry Dáil protest

Ireland:  Why are they not telling us what the 'unforeseen circumstances'  the 'crisis' is?

A disgraceful way to treat families and another example of how UNPROFESSIONAL the HSE management is and how the HSE as a health structure just does not work

Monday, May 27, 2013

Thursday, May 23, 2013

RMT Resolution On Stephen SImpson's Murder Passed Unanimously At TUC Disability Conference | RMT London Calling

RMT Resolution On Stephen SImpson's Murder Passed Unanimously At TUC Disability Conference | RMT London Calling

disabled people deserve good competent judges on the bench.  Able to face and understand disability hatred and homophobic attacks.  This sentence for Stephen's simpson's murder was derisory and insulting.  It only increases hate crime not diminishes it.

Disabled woman died after NHS blunders, ombudsman finds | Society | The Guardian

Disabled woman died after NHS blunders, ombudsman finds | Society | The Guardian

When will health providers begin to grasp the reality that disabled people and their families actually WANT THEM TO LIVE!

As a disabled person I am beginning to note the attitude of providers who are NOT pushing out the boat to make my life 'worth living'.

This story is simply one of many repeated throughout the UK and Ireland and I suspect throughout the world.

Tuesday, May 21, 2013

Mea Maxima Culpa | From Academy Award Winning director, Alex Gibney

Mea Maxima Culpa | From Academy Award Winning director, Alex Gibney

A film that HAS to be seen.  The abuse of Deaf Boys at a deaf school in Wisconsin. The most damning documentary I've ever seen.  an epic of 'Truth Telling & Confrontation' .

It explores the cover up of abuse over decades by the Vatican .  It does not only cover the abuse of the Deaf boys but skilfully documents the machinery of corruption in the Catholic Church which came from the Vatican .

BBC NEWS- ATOS doctor speaks out 16/05/13

BBC NEWS- ATOS doctor speaks out 16/05/13

A doctor who assessed disabled people's 'fitness to work' resigns and tells the truth about ATOS

Atos assessments are cruel and unethical says doctor who has resigned | Black Triangle Campaign

Atos assessments are cruel and unethical says doctor who has resigned | Black Triangle Campaign

cruelty in the UK

Disabled and sick people still fighting for justice.  No other group of people have had to fight so hard for basic human rights.  The governments position must be a 'hatred' position. It must infringe human rights.

Tearful Gillard brings in disability bill | The Australian

Tearful Gillard brings in disability bill | The Australian

This looks like good news for Australian Disabled people.  Is there something we can learn from here in Ireland

Police to investigate Brewer's remarks in new disability row | This is Cornwall

Police to investigate Brewer's remarks in new disability row | This is Cornwall

A county Councillor in the UK who previously said disabled babies should be 'put down'.  He's now taken his argument to new levels on re-election.  He resigned after the first 'furore'. 

Hope he gets jail this time!

Disability hate crime is at its highest level since records began | News | guardian.co.uk

Disability hate crime is at its highest level since records began | News | guardian.co.uk


I blame the media for their constant references to benefit 'scroungers' and Cameron's disability cuts which gives only one message....disabled people are 'draining the economy'. 

no wonder we are entering a new era of a Nazi - like mentality.

Tuesday, May 14, 2013

“I had to tell my dad he was going to die, because he wasn’t given a sign language interpreter” | The Limping Chicken

“I had to tell my dad he was going to die, because he wasn’t given a sign language interpreter” | The Limping Chicken

There are some things children should not be asked to do, even if adult.  This is one of them.  Deaf adults deserve privacy, dignity and respect with communication between them and doctors with a proper interpreter.

Sexual assault rife in psychiatric hospitals: report | ABC Radio Australia

Sexual assault rife in psychiatric hospitals: report | ABC Radio Australia

We do not take this seriously enough as we don't believe 'mentally ill' women.  Truth is most women in psychiatric hospitals are there because of male violence!  and then are further abused by male patients or staff.  Research into re-abuse points a definite finger at childhood abuse victims being targeted AGAIN as adult.

My clergy sexual abuse doctorate found that once clergy offenders knew a woman's history they were easy prey!   Same applies in our psy system.

KEEP WOMEN OUT OF THESE PLACES.

Monday, May 13, 2013

Autistic schoolboy in bullying ordeal - Local - The Star

Autistic schoolboy in bullying ordeal - Local - The Star

Are we doing ENOUGH to proect disabled mainstreamed children. NO! if this is anything to go by.  Disgraceful.

'Let me end my pregnancy': one woman's plight grips El Salvador | World news | The Observer

'Let me end my pregnancy': one woman's plight grips El Salvador | World news | The Observer

I don't normally argue FOR termination in the case of disabled babies  however THIS argument is different.  the mother's life is threatened because she has Lupus and this is a devastating auto-immune disease.

The decision is hers and I believe she has every right to save her own life!

Saturday, May 11, 2013

Disability Rights: Cornish Councillor Colin Brewer Compares Disabled Children To Deformed Lambs

Disability Rights: Cornish Councillor Colin Brewer Compares Disabled Children To Deformed Lambs

this man was re-elected after the storm when he said disabled children should be 'put down' , now he's comparing them to 'deformed' lambs!

he is a disgrace to humanity.  we are certainly moving away from humanity and in the future we will see euthanasia because these messages act at a subliminal level depositing ideas that grow.

Black men less likely to receive follow-up care after positive prostate exam | Hematology Oncology

Black men less likely to receive follow-up care after positive prostate exam | Hematology Oncology

Racist medical care in a country with a black president.  You couldn't make it up.  America is NOT the land of the free.  It's a racist country, still! Barbaric.

Baroness Warnock: Dementia sufferers may have a 'duty to die' - Telegraph

Baroness Warnock: Dementia sufferers may have a 'duty to die' - Telegraph

Where are we heading?  This is so unbelievably gross. 

But I suspect we are killing the elderly anyway...poor care, not feeding them, etc...lives are shortened and under disguise.

Friday, May 10, 2013

Thursday, May 9, 2013

Judge says no one can be proud after death of alcoholic who lived in toilet - Independent.ie

Judge says no one can be proud after death of alcoholic who lived in toilet - Independent.ie

We failed this man.  Humanity is lost if we continue to ignore our fellow human beings. 

We must get back to supporting people.
Helping those in trouble.  Reaching out.

Join my blog, become a member & make discussion and comment HAPPEN

Hey folk...come on board, become a member of this blog and get actively discussing.  especially those of us in Ireland where we rarely publically challenge anything around disability! 

News stories from the UK and around the world surely must make us think about what is happening in Ireland

1) we have no hate crime laws against disabled people
2) doesn't seem to be any special help in courts for learning disabled people to give evidence (I might be wrong)
3) cuts to benefits to disabled people increasing isolation, loneliness poverty and an underclass of vulnerable people.
4) we haven't yet ratified the UN convention on the rights of disabled people. (one of only 3 countries in Europe not to)

and so it goes on....

we must discuss and highlight

welcome aboard.

Margaret

Black triangle (badge) - Wikipedia, the free encyclopedia

Black triangle (badge) - Wikipedia, the free encyclopedia

I'm going to get black triangle badges made for lapels with Ireland across the top.  To remember disabled people and to highlight how benefit cuts 'kill'

Terminally-ill Marie has already decided on way to end her life - Independent.ie

Terminally-ill Marie has already decided on way to end her life - Independent.ie

This is Ireland.  I note how she recognises to quote "it seems they will not give me permission to die but will not help me to live either".  She is referring to all the cut backs to disability help.  She's right!

You can't kill yourself but you can live in misery! 

I'm NOT in favour of euthanasia but the issues Marie raises is painfully true.

Friday, May 3, 2013

BBC News - Local election 2013: 'Put disabled down' councillor re-elected in Cornwall

BBC News - Local election 2013: 'Put disabled down' councillor re-elected in Cornwall

A sad day for disabled people in Cornwall.  Knowing your countryfolk endorse this guy must stick in your gullet. 

How could you even ASK him for help with your disabled child or adult relative.

Sticks in my gullet....really does

and you know....people are voting for him because many DO believe disabled children should be 'put down'

frightening

Tuesday, April 30, 2013

Saturday, April 13, 2013

Atos pays out to man left in pain and distress by assessment

Atos pays out to man left in pain and distress by assessment

UK again...the place where they'll spend 10 million pounds for Maggie Thatchers funeral and dump disabled people in the sewer!

Wednesday, April 10, 2013

Has the government broken the law over disability benefit changes? | Sean Rivers | Comment is free | guardian.co.uk

Has the government broken the law over disability benefit changes? | Sean Rivers | Comment is free | guardian.co.uk

crazy that if you were eligible for a benefit not able to walk over  50 metres you are not now because it's been reduced to 20 metres!

So last year you were disabled, this year you are not!

Tuesday, April 9, 2013

Diagram of Tax Avoidance vs Benefit Fraud

Diagram of Tax Avoidance vs Benefit Fraud

The UK conservative gov and many right wing papers argue that there are THOUSANDS of welfare benefit scroungers.  Here's the truth!

Monday, April 8, 2013

George Osborne ducks TV debate with disabled campaigner Baroness Tanni Grey-Thompson - Mirror Online

George Osborne ducks TV debate with disabled campaigner Baroness Tanni Grey-Thompson - Mirror Online

Love it! Cancelled due to 'chemistry between the guests'  HA!  That made me laugh.  You mean sparks would fly and Osborne afraid of his life - coward!

Really pisses me off to see UTV pandering to this childish behaviour!

Sunday, April 7, 2013

New welfare row as 600,000 are set to come off disability benefit - Telegraph

New welfare row as 600,000 are set to come off disability benefit - Telegraph

The attack on disabled people is reaching Hadamar proportions!   we need to stamp out current 'fascist' thinking against Disabled people.  This is a hate crime disquised as politics and economic reform

Thursday, April 4, 2013

Review of Transport Support - Ireland- My views & Concerns


‘Review of Transport Supports’ - Ireland



Dr Margaret Kennedy looks at the issues and expresses her concerns.
Magsken57@gmail.com tel: 0868786937

Date: 4.4.2013

 

 

This consultation, in my view, is an attempt by the Irish Government to deny disabled and elderly people their rights to mobility & accessibly which includes a right to ‘freedom of movement’, ‘freedom of association’, and the fundamental right of ‘freedom of self-determination’.

On April 2nd 2013 The Irish Government announced a


Review of transport solutions for people with disabilities
The Department of Health is holding a public consultation to guide consideration of a replacement solution or solutions for the transport and mobility needs which have been met by the Mobility Allowance and Motorised Transport Grant schemes. These two schemes have recently been closed by the Government, because the Ombudsman has found that they were not consistent with the Equal Status Acts.
Any new solution will use the funds currently spent on these two schemes to meet priority transport needs for people with disabilities, whatever their age.
The purpose of the consultation is to hear the views of the widest possible number of people who have an interest in this and in particular the people who are currently in receipt of either the Mobility Allowance or the Motorised Transport Grant.
All submissions must be made no later than 17:00 hours on Wednesday 17th April 2013.
An on-line version of the form for submission will be available on this page in the coming days. However, as an alternative, submissions can be made:
By e-mail by filling in the
Word Version of this form and sending it to:


Transport_Review@health.gov.ie
By post by completing the PDF Version of this form and sending it to:
Mobility Allowance/Motorised Transport Grant Review
Disability Unit
Department of Health
Hawkins House
Hawkins Street
Dublin 2

Here are my concerns.

This public consultation is the Irish Governments attempt to squeeze a reliable mobility/transport scheme into narrow parameters as a cost-cutting ‘austerity’ cut back. Though ’ring-fencing’ the 10million euro the scheme presently costs the governments said a scheme that fit’s the legal requirements would cost 300million. Thus the government is still not willing to give the rights of disabled and elderly people to a means of mobility and transport as required in law.

The scrapping of the scheme came (allegedly) after advice from:


Ombudsman Emily O'Reilly castigated the department for imposing restrictions to mobility and transport allowances, which she said were illegal.
She found the upper age limit of 66 years for the mobility allowance was discriminatory and in breach of the Equal Status Acts.
She also found that no account was taken of the mobility of those with psychological or intellectual disabilities.

On scrapping the schemes the government spokesperson said:


The Government is conscious of the position of the Ombudsman that the schemes are illegal in the context of the Equal Status Acts.
The Government has today decided that it is no longer possible to allow the two schemes to continue as they presently operate and to devise an alternative scheme for meeting people's needs.
The decision has been taken after the commencement of a consultation review process with representatives of those people affected."
He added: "The decision is in no way intended to save costs, and the funding involved in the two schemes – worth €10.6m – remains committed to meeting the transport needs of relevant people."
 
But Mr Dolan of the Disability Federation said:


The department is taking the view that it was forced to take this action.
The department is not the victim here, the 4700 people with disabilities and their families are the victims of what can accurately be described as an unprecedented and unannounced withdrawal of vital funding."
 

Enda Kenny announced:

These two schemes — the motorised transport grant and the mobility allowance — are illegal, are not in conformity with the Disability Act, are not in conformity with the Equal Status Act, and are not in conformity with our Constitution. We cannot stand over a scheme that is obsolete, that is unfair, that is discriminatory, that is not in compliance with these acts and therefore we have got to deal with it.
 
The
Department of Health accepted the scheme breached equality laws but said it could not afford the €300 million to widen eligibility.
 

We should be under no illusion; this ‘consultation process’ is but an attempt to hoodwink the public and disabled and elderly people into believing that the government is being openly transparent and democratic through this consultation process.

The government has already stated that they could not come up with an alternative scheme after Emily O’Rielly’s comments that the present scheme - to be scrapped- was illegal. They have told us they looked closely at all possibilities and could not devise any alternatives. Probably because they were intent on cost cutting rather than providing an equitable scheme . It beggers belief that this new process will achieve anything of an equitable nature.

The actual questionnaire, for those who wish to submit their views and suggestions, is a true testament to the gross lack of understanding of the issues of mobility, transport and accessibility for all groups needing this support:


Disabled people
Elderly people and those over 66
Those with psychological difficulties
Those with intellectual difficulties

Furthermore, that the government has given two weeks for submission to the panel set up to address these issues speaks volumes that they do not fully understand that many disabled people will need help to give their views and opinions. Getting that help will take time. Many disabled people due to being unable to understand the questions or not able to use computers or hold a pen, or unaware of the technical or legal aspects will find it difficult to submit their views.

A critique of the consultation questionnaire.

It has to noted that no-where in this questionnaire are the needs of the elderly (over 66) and those with psychological difficulties or intellectual difficulties, those groups Emily O’Reilly said had been unlawfully excluded from the present scheme to be scrapped, is mentioned or addressed.

Question 1: Who is making the submission?

It would seem to me that the detailed information required of those making submission is intrusive and unnecessary. Is the person who is age 66+ to be disregarded whilst a person 18-24 to be more regarded?

Does it matter whether a submission is from one in employment or one in ‘home duties’/retired?

Does it matter whether your views and suggestions are from a person in receipt already of a mobility grant or one who has a free travel pass?

I fail to understand the rationale for such an in depth personal details enquiry by the review panel .

Furthermore the purpose for the request for the name and address and contact details (though these are optional) of the submitting person is again not explained.

Will your details go on some database? Will your views compromise any future application for support?

Question 2: For those in receipt of the present benefits: These questions seem reasonable and valuable, though I have concerns about the first part:

If you have been in receipt of the mobility allowance or motorised transport grant : please describe what you have used the mobility or motorised transport grant for?

This is problematic because many people use their grants to improve their lives in relation to ‘companionship with others’, (association), to allay loneliness, to save for a special outing, and in the views of those unable to understand the limitations of people with disabilities or elderly people their use of these grants may seem contrary to the purist notion that such grants should only be used to get from point A to point B. If they have therefore given their names and addresses will future benefits be compromised if such imagination in use of grants is deemed too ‘imaginative’!

Question 3: Who should be eligible for support?

This, in my view is the most concerning question in the consultation process.

In view of the fact this consultation process ‘is to hear the views of the widest possible number of people who have an interest in this’ which could include those members of the public who view all disabled people as ‘scroungers’ and ‘deceitful’ or ‘liars’ as well as those who have no idea of either disability, impairment, mobility, access, or elderly people.

This question asks ‘the widest possible number of people’ to decide who should get benefits. Is the blind person more deserving than the wheelchair user? Is the wheelchair user more deserving than the person who cannot drive? This question pits one disabled group against another. It fosters a hierarchy of ‘seriousness’ or ‘worthiness’. It fosters discrimination on the grounds of judgements about people’s lives which are complex and difficult .

The ‘scoring’ of people in rank of ‘importance’ from 1-8 is objectionable and obscene.

The needs of the elderly (over 66) and those with psychological difficulties or intellectual difficulties, those groups Emiliy O’Reilly said had been unlawfully excluded from the present scheme to be scrapped, are not included in the list of persons to be ranked ‘in order of importance’.

It shows how simplistic and unprofessional this governments understanding of disabled people’s needs are.

 

Question 4 Limited access to Transport .

 

This question asks people to rank in order of importance 1-7 the factors that should be taken into consideration in deciding eligibility.

This is utterly nonsensical. The separate ‘criteria’ to be ranked are not mutually exclusive. The separate criteria makes a mockery of understanding ‘transport’ as a fundamental right of disabled, sick or elderly people.

For some purposes e.g. getting to a hospital appointment criteria ‘a’ might be the case, but another purpose getting to the shops criteria ‘b’ might be the case. In a further scenario criteria ‘c’ might be the case.

Why should ‘not having a car’ for example be a criteria? Those disabled people who drive may on some days be too ill to drive. They may be too tired to go on a long journey and drive themselves. They may have a car but do not drive it themselves but it is only used during the allocated hours of a personal assistant.

The ranking of diverse criteria is a complete nonsense.

 

Question 5: How should people be assessed?

I am concerned that
the ‘widest possible number of people who have an interest in this’ who are asked to contribute to this consultation may be the general public not versed in any disability awareness/equality or understanding.

The ranking system this time (1-3) ranks professionals as the ‘most important’ person to do assessments! The medical practitioner is this time pitted against the OT. No other profession is acknowledged /mentioned therefore not obviously seen as relevant. The nurse, the social worker, the person’s carer, the person themselves do not seem to be regarded as relevant people in any assessment process.

This leaves the disabled person at the mercy of individuals who may not have the skills or expertise to ascertain why the person has mobility/access needs. They may not judge that a depressed person, for example, needs a mobility allowance to encourage participation in life as they focus on physical ability only.

This question is utterly inadequate. The assessment process is of crucial importance but disabled people themselves or those who need these benefits should have a full and proper part in this process.

This is not acknowledged.

 

6: How often should qualification be reviewed?

This is a reasonable question if some people are going to be regarded as ‘temporarily’ eligible. However most people who fit eligibility criteria will need such benefits life-long. Unnecessary anxiety of constant assessment or review should not be foisted on already complex lives.

 

7: Purpose of transport Support

Another ‘ranking of importance’ (1-6) exercise. Again suggesting some people are more important than others. There is a serious danger that those who need these benefits for ‘getting out and about and socialising or visit family/friends will be ranked lower than going to hospital appointments or work.

This is prejudicial against those who do not work, the elderly, mentally ill or intellectually impaired.

Again a completely simplistic analysis of ‘living life with an illness, impairment or disability’.

 

8. What is the best way to provide supports to individuals who qualify?

I am concerned that disabled people will find this question with the many varied options unanswerable in the light of the short time-frames for responding.

Disabled people should have had adequate and full time to explore all these possibilities. This has not, as far as I understand it been afforded.

There are financial, legal, human-rights aspects not addressed here.

 

 

 

 

Conclusion.

I find this ‘consultation’ process discriminatory, inaccessible to many and simplistic of the complex needs of disabled, ill and elderly people.

Many disabled, ill or elderly person will not be able to contribute to this consultation process due to time and lack of discussion around these issues as well as issues of access and communication given the person’s impairment.

The message of ‘professionals will decide eligibility’ gives the recipient or potential recipient no ‘self-determination’ in this process.

Human rights are not anywhere acknowledged and the ‘ranking’ of people with different conditions against each other is objectionable and divisive.

The ranking in ‘order of importance’ will lead to discrimination on the basis of whether one works or does not.

The whole document exudes the slant that this process is taking and it only speaks of ‘cuts’ and more cuts.

It does not seek to make the lives of recipients or potential recipients more fulfilled, less lonely and more achievable.

It simply seeks to find the lowest common denominator and thus aims to exclude those ranked ‘not so important’ and those with alleged concerns ‘not so important’.

The title ‘Review of Transport support’ minimizes the issues. ‘Transport’ is essential in all walks of life and it is through transport that equality, human rights and access to services, community and health is fully achieved.

The simplistic analysis that ‘Transport’ is only about getting from A to B in some deemed ‘important’ occasions or circumstances rules out any idea that transport is a fundamental human right.

I believe this consultation process is not an exercise in democracy but is, in fact an exercise in de-humanising of people with complex needs and vulnerabilities.

I also believe it is an exercise in achieving ’austerity cuts’ and ’locking out’ of a swathe of eligible recipients from any new scheme of alleged ’transport support’.



Dr Margaret Kennedy (PhD)

Independent Consultant on Disability

Disabled person

And campaigner on Disability rights and equality