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A campaigner against Clergy sexual Abuse, Disablity Inequality & abuse, Housing Scandal for disabled people, HSE inadequacies

Thursday, July 28, 2016

Killing Disabled People in Everybody's Mind

The killing, murder, annihilation of 19 disabled people in Japan has not had the coverage that other massacre have of recent days.

Few posted on facebook who were not already disability activists. The news laboured on the murderer's mental illness. A way of 'diverting the gaze' from the societal reality that actually, most people see disabled people as aberrations. It is 'understandable' what he did. Most people would chose, if they could, to NOT have disabled children. Most would 'chose', if they could, euthanasia. Thus the eugenic mentality is established in the abortion laws of a great many countries already. In the 'right to die' discourse that allows disabled, sick or elderly person relieve themselves of their personal misery of impairment or illness! Even if the alleged 'misery' is that hardship brought by the poor services of support, the neglect of the state...sure that's deliberate...to make us walk the path of Euthanasia...

In Australia I hear a TV's response to the massacre is to roll out Peter Singer, the so called ethicist who peddles worldwide killing of disabled people. All neatly packaged as morally defensible. How can THAT be the starting point discussion of the massacre of 19 people who had their throats cut by a person who believed they had a) the moral right to do it and b) the justification of the 'good of society'.  Where did these beliefs come from?
actually these beliefs are endemic in society.  Its the HATE agenda. Nothing about 'mental illness' there...its a common ableist agenda. (Unless of course all non-disabled people are mentally ill for proposing our demise).

That's how the Australian TV company CAN roll out Peter Singer....because it fits the beliefs of eugenics that simmers below every non-disabled person's heart and mind. It all makes sense so Peter Singer is just the right person to explain it. yes?

Since the killing no-one has started a debate about the Lives of Disabled people mattering. Because folk....Disabled peoples lives DON'T matter!  Not to most non-disabled people anyway.

The ableist agenda has always been 'eradication'. With disabled children and adults viewed as expensive, difficult, burdens, a drain on the health services, a drain on the economy and living desperate lives of misery. This was NOT a Hitlerian belief, though Hitler brought it through to the awful end point of Hadamar and other 'killing disabled people factories'. Eugenics started in America and the UK long before Hitler caught the bug!

No one questions where the 'misery' of living with an impairment often emanates from...the lack of services, supports, investment , care of disabled people. Though huge swathes of disabled people argue their lives are NOT full of misery that most ableist's argue.  But life is hard if you are poor and disabled. Life is hard under the gaze of annihilation, euthanasia, eradication. Life is hard under discrimination, oppression, and abuse .

I've long viewed the poor services disabled people receive as eugenic. after all, what parent wants to spend years begging for help for their disabled child/ better by far NOT to have their disabled child born in the first place. The message is "if you have this disabled child it will be YOUR fault, your fault only, if you have a life of burden and hardship". Society says "We won't be helping you with this child,[or adult] you'll be on your own".  So how does society make this happen? they withdraw services so parents chose not to have disabled children.

The 'hardship' of disability is written into every parents pre-natal planning processes. The belief our lives are 'misery' from our impairments rather than the discrimination and abuse of ableist society towards us has to be the discourse if we are to be 'eradicated'.

The withdrawing of services carries on throughout life,  you must beg for your needs to be met. you are expensive. The Ableist politician feels fully justified in believing; "Why should the STATE make your life worth living when your life is NOT worth living?"  "you should not be here", "you are an aberration - a 'useless eater'".

Ask any Irish Politician, the country I live and suffer in as a disabled woman, "why do you not provide decent, appropriate powered wheelchairs/wheelchairs for disabled children or adults?"   "Why is it that 38% of  wheelchair users say their (state provided) wheelchairs are not suitable?" (that's 15,000 people).

The answer won't be "because we are NOT investing in your life. Because we don't see you with rights to movement, association, travel, employment, fun or comfort!"   (though that's the REAL reason).  No, the answer is fully devious and ableist.

The answer will be the excuse of 'austerity' or the downturn in the economy, or we are going through an economic depression'. All sounds reasonable until you look where all the money DOES go to, like foreign junkets for politicians, or refurbishing of the Dail (parliament) buildings, or raising the salaries of the TD's (our elected politicians) or other such trivial things...

You have to ask why Ireland is the LAST European country to ratify the UN Convention on rights for disabled people?

Or why 'Grace' a disabled woman was left with her foster carers who sexually abused her for years whilst non-disabled kids were removed years before her ?

The answer is, unsavoury as it is disgraceful.  Our lives do NOT matter.
The agenda is to make our lives as difficult as possible so we can be, eventually, eradicated. euthanized, not born.

They don't slit our throats in Ireland...

but nevertheless living with a disability in this ableist society is annihilating. The Irish politician is no better than the throat-slitter of Japan.

But that's true of most non-disabled people...who cannot see 'value' in any disabled person.









 

Friday, November 21, 2014

Wheelchairs designed in hell

Apparently patients/disabled people do NOT know the sort of wheelchair we need.

Once you become ill or disabled you lose POWER. POWER over one thing you should have power over - your own body.

The dialogue might sound something like this:

me:  " I need a powered wheelchair"

Occupational Therapist (OT): "yes, you do"  (quite obvious - so agrees)

POWERED WHEELCHAIR (from hell)  ARRIVES
 
me: "The wheelchair slides towards roads on sloping footpaths" (fishtails- dangerous) 
 
OT; [tries it out on non-sloping path!]  "seems ok"  [NOTHING DONE]
 
me: "the wheelchair hurts my back, has no suspension, dreadful"
 
OT:  SILENCE
 
me: "The wheelchair is causing me huge pain "  [admission to hospital after trip out in wheelchair]
 
OT: SILENCE
 
me: "it really, really IS causing me huge pain, I'm on morphine" [spinal arthritis]
 
OT: SILENCE
 
me: "the wheelchair needs a tilt facility and headrest , I flop over when I'm tired"  [muscle myopathy. i.e. degeneration]
 
OT: SILENCE
 
me: [Sobbing] "why are you leaving me with a crap wheelchair?"
 
OT:  "I can't do anything Margaret" [helpless whinge on end of phone]
 
me: "it's up to YOU to fight for me"
 
OT: "You know I can't do anything" [distressed whinge on end of phone]
 
me: "why are the managers doing this?" 
 
OT: [powerless-whinge 'sigh' end of  phone] 
 
 
The only resident in my house that likes my wheelchair!
 
I received the OT assessment on Friday.  Not I hasten to add done by my local OT (whom I actually like - and feel sorry for), no, it was done by her manager. It makes interesting reading.  She fails to acknowledge my Parkinson's diagnosis. Fails to acknowledge it's progressive. Fails to acknowledge I'm deaf "[Margaret] states she wears two hearing aids - no obvious deficit noticed",   mmmmnnn I was wearing TWO HEARING AIDS, profoundly deaf one ear, severely deaf the other! have been since birth!
 
Then after all my complaints that I needed a wheelchair that gives more support to my back and head because I begin to 'flop' after a while with fatigue due to muscle myopathy, I find under 'head control'...a box to be ticked if head control is compromised by fatigue. Ah...I see...the assessments HAS got that down there...it's a VALID thing to assess, they SHOULD assess it! Great!  wait, but,...hey "that's not right" ...she fails to tick that box.
 


Now THAT is interesting...
 
Why would she LEAVE out the very thing I'm saying ? 
 
The reality is these alleged 'wheelchair & seating assessments' are no longer done to make sure the patient/client/service user/consumer receive what he/she needs. They are done deviously to PREVENT said people getting the wheelchairs we need.
 
I call this 'Manipulation of the facts'. 
 
This senior OT manager made a decision that my wheelchair (above) was suitable yet I was saying it was causing huge pain, that I couldn't sit upright and that it was not acceptable.  Nor did it conform to the World Health Organisation wheelchair standards.
 
But Co Wicklow choses to play their own tune.  The Patient is never right - WE ARE!
 
But this is economic, political and nothing to do with doing a proper assessment.
 
This is Ireland - a country that has STILL NOT implemented the UN Human Rights Convention on disabled people. why...because they know HUMAN RIGHTS includes providing what is essential to our lives and they don't want to. PERIOD.
 
 
                                                                                                         
 
 

 

Tuesday, August 26, 2014

RIP Jan, Another Victim Of Welfare Reforms | Same Difference

RIP Jan, Another Victim Of Welfare Reforms | Same Difference



A truly horrendous story of a disabled woman, Where were her friends, family, community?



OK we all agree the UK conservative government policies are evil (well right minded DECENT people do), especially as they relate to sick and disabled people. But the COMMUNITY seemed to be ABSENT from this woman's life.



I want to know who else failed her? Who lived beside her, down the street from her, up the road, in the local churches, in the local charities.



Disgraceful.



We MUST really begin to behave like a COMMUNITY , move away from individualism. 'I'm alright jack' mentality.



Unless we do more and more people are going to suffer.